Thursday, June 23, 2016
Wednesday, June 22, 2016
The Beginning of Treatment
June 2, 2016 –
I met with my cancer surgeon – Dr Lisa Torp.
7:45 am . . . my world changes in an instant. Dr Torp is extremely intelligent, very
compassionate and gave us every detail possible.
She started
by showing us the mammogram films. She
said my breasts are not dense at all and that helps with finding anything. The cancer is in the inner part of the
breast. She showed the areas in the
ducts that they believe the carcinoma insitu is.
The carcinoma
is less than ¼ of my breast - not too
small but not overly large.
There is a
lymph node that looks abnormal – (this is not the sentinel node)
Ductal cancer
– most cancers start within the milk ducts.
DCIS – I have
one area of invasive cancer 9mm or (slightly less than 1 cm) (1/3 of an inch) –
this is possibly the largest area of invasion.
We will not know for sure until after surgery.
Right Now I
am considered Stage I.
They look at
additional information – they look at the cells and the pathologist assigns a
score= grade on how cells look, if they are organized or aggressive.
High grade
means they are more aggressive cells and they are more disorganized
They look at
breast panel or markers such as estrogen receptors. If there is no estrogen positivity (not
estrogen sensitive) this is a poor indicator and it is a more aggressive cancer.
Pills would not be used for this invasive cancer.
The DCIS in
the ducts showed a 5% positivity – not a strong factor – we could use pills
such as tamoxifen. This
will be retested after surgery.
I have HER2
neu positivity with ER negative and PR Negative.
The cancer is
considered High Grade
Although
pills would not be used for the HER2 portion – there are targeted therapies for
HER2 cancer. Chemotherapy is recommended
using Herceptin and possibly perjeta if the invasive portion is more than
2cm. There are situations where HER2 is
improved if chemo is before surgery.
1) Status of the lymph node 2)
abnormal ultrasound 3) breast biopsy
We need to
establish the status of the suspicious lymph node.
The lymph biopsy
will show if cancer is in the body -we would treat the body first
If the lymph
node comes back good then Lumpectomy with radiation – lumpectomy and radiation
are linked together.
If I would
get a mastectomy I may or may not need radiation
There are situations where
radiation is still needed
2, 3, 4 cm involvement of cancer
Lymph
node involvement
Aggressive
types of cancer
The
doctor said I am a candidate for lumpectomy right now.
From a letter
sent to my PCP:
“Clinical stage I hormone receptor negative her 2
positive left breast cancer .
She may
actually be stage two as she has a palpable left axillary mass and clinically
suspicious axillary lymph node on ultrasound. Staging significantly impacts
decision making about neoadjuvant chemotherapy versus surgery as her first
intervention”
So a
battery of tests begins to help with my treatment plan:
Ldex screening
– helps monitor lymphedema risks
http://www.breastcanceranswers.com/ldex-score-how-it-helps-to-monitor-lymphedema-risks/#.V2qJcrgrKCg
Chest Xray
EKG and Blood work.
June 6th
– Breast MRI
June 8th
– Genetics Appointment
June 9th
– Lymph Node biopsy for the suspicious lymph node (not the Sentinel)
June 10th
– CT Scans, Bone Scans
June 13th
– Echocardiogram
June 15th
– First Oncologist appointment
June 17th
– Port placement.
Tuesday, June 21, 2016
Health 2015/2016 Recap
I will recap this year of 2016. First of all I have had pain in my body for many years. Whiplash at age 19, dislocated kneecap, torn ligaments, wear and tear of getting older. That over 50 number !~ I’ve also had a history of sinus issues and asthma. In May of 2014 I had sinus surgery. In December 2015 – the week between Christmas and New Years, I had a horrible earache. I went back to the Dr who performed my sinus surgery and he prescribed steroids and Bactrim (a sulfa antibiotic).
A few days into taking the medications, I experienced severe pain that radiated from my forehead, down my spine, down my sides and front of my body. I tried to withstand the pain but at 2 am, I relinquished and asked hubby to take me to the emergency room. They gave me painkillers. The emergency room is basically triage so the doctor thought I had the flu. Hubby had mentioned that both he and our son had body aches as well. I know how my body feels, and it wasn’t the flu.
I followed up with my family doctor as instructed. Since the two medications were the only differences they said I probably had a reaction to the Bactrim. I stopped taking the Bactrim and the pain subsided. I had lab tests done and due to whatever the Bactrim did to my body, all of my numbers were elevated.
It was a New Year and I decided it was going to be a Year of changes. I was tired of experiencing inflammation in my body. Tired of the pain. I try as much as possible to stay away from even OTC medications. I researched types of foods to lower my inflammation. I researched and am using essential oils. I knew I had to lose weight. I had been losing weight but decided I needed an amp up in that department. I decided to join the Pinnacle Weight Loss program. As of today I have lost 33 lbs since January.
I also was experiencing terrible pain in my left arm. Visit to my doctor again. My decision – physical therapy or go to an orthopedic doctor. The whole month of March I went to Physical therapy. I also was going to my chiropractor, Dr Bob. He had provided me with the most relief of any of my pain I had been experiencing. My range of motion was restored, however I still had pain running down my arm and the top of my shoulder. Dr Bob advised it was an impingement.
May 19, 2016 Next step, going to an Orthopedic doctor, I had an MRI on my shoulder and the results were partially torn rotator cuff. The Orthopedic doctor advised that we would see how my arm healed especially since the possibility that the Radiologist felt that 85% chance I had breast cancer.
May 31, 2016 – Appointment with my rheumatologist– I had appointments with the rheumatologist – through more lab work and testing, Rheumatoid arthritis was ruled out, however through Xrays, I have osteo arthritis in my clavicle and spine along with my degenerating discs C2-C 7 – (which pretty much covers the cervical discs). I also have an impinged shoulder.
The rest of my health now takes a backseat . . . Now the "C" word . . . (sorry for the backtrack. .. there is a reason)
Monday, June 13, 2016
One of the Hardest Parts - Wait
Wait
verb \ˈwāt\
Simple Definition of
wait
: to stay in a place
until an expected event happens, until someone arrives, until it is your turn
to do something, etc.
: to not do something
until something else happens
: to remain in a state
in which you expect or hope that something will happen soon
Biopsy May 20, 2016 - I was told I would have the results the next day. Then they realized it was the weekend coming up. I would have to wait until Monday.
We were going to the Poconos to celebrate our 30th Wedding Anniversary. I enjoyed the outdoors and the hikes, dinner out with hubby and being in nature.
Monday - May 23, 2016 - I was promised a call around 4 pm. Everyone is Waiting~
I received a call - the results were not back in yet.
Tuesday - May 24, 2016 - Our actually 30th Wedding Anniversary
They called with my results around 4:30 pm.
"FOLLOW-UP
POSTBIOPSY - 5/24/2016
Stereotactic
core needle biopsy of calcifications and ultrasound-guided core
needle
biopsy of a nodule left breast were performed on your patient by my
associate,
Dr. XXXXX, on 05/20/2016. The patient tolerated the procedure
well. On my
phone conversation with her today, she reported no significant
complication
post biopsy.
The final
pathology diagnosis of left stereotactic biopsy of calcifications
unfortunately
revealed high-grade ductal carcinoma in situ. The
ultrasound-guided
core needle biopsy of the left breast nodule revealed
high-grade
invasive ductal carcinoma. The pathology report was explained to
the patient.
She took the news fairly well although obviously she was
disappointed
with the positive results."
That Nasty"C" word
Routine Mammogram - May 10, 2016 . . . 5:30 pm
Or so I thought. I go to my mammograms faithfully. It was recommended I go every 2 years, so time flew by and I hadn't had one since 2011 !~ So unlike me. I went to Tristan's and the usual, get in the gown, let the mammogram machine do its thing. I went and sat in the waiting room. The technician comes out and says "the doctor wants some closer views". Okay, I trot back into the room. This time, I was really squished. Go back to the waiting room. I've never had an irregular mammogram. The technician comes back out and says, the doctor wants an ultrasound. You can wait 45 minutes or come back again. Feeling a little anxious. I said I will wait.
Ultrasound complete. The technician comes out and says the doctor wants to meet with you. I am getting anxious.
I go into the room where the doctor is sitting, and he has a very serious look on his face. He says from what I am seeing it is 85% sure that you have cancer. I am sorry. No - not the "C" word. It can't be. I bat back a few tears and ask what is next. He advised that my PCP will be notified and they will want to do a biopsy.
I get back home after 7:30 pm. John asks what took so long and I break the news to him. He said he as so sorry and hugged me tightly.
I patiently wait for a call that I am scheduled for a biopsy. The call comes - it is scheduled for Friday May 20th at 8 a.m and will take 3 hours.
Biopsy # 1 - Left Breast - May 20, 2016
I am prescribed to have two Biopsies - one of the calcifications and one of the lesion/tumor
Stereotactic Core Needle Biospy -
Stereotactic breast biopsy uses mammography – a specific type of breast imaging that uses low-dose x-rays – to help locate a breast lump or abnormality and remove a tissue sample for examination under a microscope. It’s less invasive than surgical biopsy, leaves little to no scarring and can be an excellent way to evaluate calcium deposits or tiny masses that are not visible on ultrasound.
Biopsy # 2 - Left Breast
Or so I thought. I go to my mammograms faithfully. It was recommended I go every 2 years, so time flew by and I hadn't had one since 2011 !~ So unlike me. I went to Tristan's and the usual, get in the gown, let the mammogram machine do its thing. I went and sat in the waiting room. The technician comes out and says "the doctor wants some closer views". Okay, I trot back into the room. This time, I was really squished. Go back to the waiting room. I've never had an irregular mammogram. The technician comes back out and says, the doctor wants an ultrasound. You can wait 45 minutes or come back again. Feeling a little anxious. I said I will wait.
Ultrasound complete. The technician comes out and says the doctor wants to meet with you. I am getting anxious.
I go into the room where the doctor is sitting, and he has a very serious look on his face. He says from what I am seeing it is 85% sure that you have cancer. I am sorry. No - not the "C" word. It can't be. I bat back a few tears and ask what is next. He advised that my PCP will be notified and they will want to do a biopsy.
I get back home after 7:30 pm. John asks what took so long and I break the news to him. He said he as so sorry and hugged me tightly.
I patiently wait for a call that I am scheduled for a biopsy. The call comes - it is scheduled for Friday May 20th at 8 a.m and will take 3 hours.
Biopsy # 1 - Left Breast - May 20, 2016
I am prescribed to have two Biopsies - one of the calcifications and one of the lesion/tumor
Stereotactic Core Needle Biospy -
Stereotactic breast biopsy uses mammography – a specific type of breast imaging that uses low-dose x-rays – to help locate a breast lump or abnormality and remove a tissue sample for examination under a microscope. It’s less invasive than surgical biopsy, leaves little to no scarring and can be an excellent way to evaluate calcium deposits or tiny masses that are not visible on ultrasound.
Biopsy # 2 - Left Breast
ultrasound-guided core biopsy of the hypoechoic nodule.
Following
ultrasound biopsy and ultrasound-guided clip deployment,
digital
mammographic images of the left breast were obtained to
assess position of
both clips. ultrasound-guided core biopsy of the hypoechoic
nodule. Following
ultrasound biopsy and ultrasound-guided clip deployment,
digital
mammographic images of the left breast were obtained to
assess position of
both clips.
Saturday, June 11, 2016
Beginning of My Journey
Cancer Cannot . . .
Cancer isn't prejudice
It doesn't discriminate from me to you;
It changes life in one split second,
But here's what it cannot do.....
It cannot take our courage or strength
Our willingness to persevere;
It cannot take our spirit or faith,
Our Hope that a cure is near.
It cannot take our persistence or patience,
Our ability to walk with pride;
It can't take our self-respect,
As we fight for every stride.
It cannot take our sights or dreams,
Our wishes it cannot shatter;
It can't take our memories,
Our account for what matters.
It cannot take our integrity or mind
Our willingness to feel alive;
It can't take our continuous
Our belief that we WILL SURVIVE
~ Unknown
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